Summary of two-day international workshop on new challenges in research ethics in Lima, Peru, August 2018by REDe
In planning for a second Kenyan case study for REACH a multi-country study aiming to understand ethical dilemmas and appropriate responses in studies involving vulnerable populations – we needed some advice on how to conduct interviews with adolescents exposed to HIV (HIV positive themselves, or having HIV positive parents). Here are some of the ideas on interviewing adolescents that we shared in a 2-hour brainstorming session.
Demonstrating Impact in Participatory Health Research: Reflections of engaging with participatory health researchers from around the globeby Kim Ozano
The Participatory Action Research (PAR) approach and paradigm is gaining ground within implementation and operational research agendas for international health interventions and programmes. The action planning, implementation and reflection stages allow for immediate research uptake and modification.
Knowledge and attitude towards Ebola and Marburg virus diseases in Uganda using quantitative and participatory epidemiology techniquesby Luke Nyakarahuka, Eystein Skjerve, Daisy Nabadda, Doreen Chilolo Sitali, Chisoni Mumba, Frank N. Mwiine5, Julius J. Lutwama, Stephen Balinandi, Trevor Shoemaker, Clovice Kankya
Useful paper which uses mixed qualitative and quantitative methods to consider knowledge and practices around ebola and marburg virus in Uganda
Unintended consequences of the ‘bushmeat ban’ in West Africa during the 2013–2016 Ebola virus disease epidemicby Jesse Bonwitt, Michael Dawson, Martin Kandeh, Rashid Ansumana, Foday Sahr, Hannah Brown, Ann H. Kelly
This interesting article uses qualitative research to consider the impacts of the bushmeat ban, and consider whether illegalising bushmeat had the desired effect. Useful, interesting paper for anyone with an interest in the ebola virus and how to encourage behaviour change.
Evolving friendships and shifting ethical dilemmas: fieldworkers' experiences in a short term community based study in Kenya.by Dorcas Kamuya, Sally Theobold, Patrick K Munywoki, Dorothy Koech, Wenzel P Geissler, Sassy Molyneux
In this paper, we draw on qualitative observation and interview data collected alongside a six month basic science study which involved a team of FWs regularly visiting 47 participating households in their homes. The qualitative study documented how relationships between field workers and research participants were initiated, developed and evolved over the course of the study, the shifting dilemmas FWs faced and how they handled them.
Research Involving Health Providers and Managers: Ethical Issues Faced by Researchers Conducting Diverse Health Policy and Systems Research in Kenya.by Sassy Molyneux, Benjamin Tsofa, Edwine Barasa, Mary Muyoka Nyikuri, Evelyn Wanjiku Waweru , Catherine Goodman, Lucy Gilson
The authors examine the ethical issues that arose for researchers over the course of conducting three HPSR studies in Kenya in which health managers and providers were key participants.
"In order to facilitate greater engagement with the concept of power among researchers and practitioners in the health systems and policy realm, we share a broad overview of the concept of power, and list 10 excellent resources on power in health policy and systems in low- and middle-income countries, covering exemplary frameworks, commentaries and empirical work. We undertook a two-stage process to identify these resources."
Are you interested in improving global public health? Are willing to live in Zambia for a year? Do you have a Master’s degree? The Centre for Infectious Disease Research in Zambia (CIDRZ) is the largest independent non-governmental healthcare and research organisation in Zambia. They conduct locally-relevant, leading-edge healthcare research, strengthen primary health care systems in multiple focus areas, and run a state-of-the-art medical and research diagnostic laboratory.
Developing Ethical Practices for Public Health Research Data Sharing in South Africa: The Views and Experiences From a Diverse Sample of Research Stakeholdersby Spencer G Denny, Blessing Silaigwana, Douglas Wassenaar, Susan Bull, Michael Parker
This qualitative study examined the perceptions, experiences and concerns of 32 research stakeholders about data-sharing practices.
Abstract Importance While guidance on statistical principles for clinical trials exists, there is an absence of guidance covering the required content of statistical analysis plans (SAPs) to support transparency and reproducibility. Objective To develop recommendations for a minimum set of items that should be addressed in SAPs for clinical trials, developed with input from statisticians, previous guideline authors, journal editors, regulators, and funders.
The Africa Research Excellence Fund (AREF) is delighted to announce the launch of the Excell Researcher and Leadership Development Programme funded with a grant from the Robert Bosch Stiftung.
This helpful presentation is the result of a workshop held in Durban by The Global Health Bioethics Network (course facilitators: Maureen Kelley, Patricia Kingori, Dorcas Kamuya, Mike Parker).
Conducting good, ethical global health research is now more important than ever. Increased global mobility and connectivity mean that in today’s world there is no such thing as ‘local health’. As a collection, these stories offer a flexible resource for training across a variety of contexts, such as medical research organizations, universities, collaborative sites, and NGOs.
This Journal of Medical Ethics article discusses governance around social sciences and ethical review
Increasing demand for qualitative research within global health has emerged alongside increasing demand for demonstration of quality of research, in line with the evidence-based model of medicine......