A new, open-access toolkit for researchers and data managers is released today, providing guidance, resources and an eLearning course about ethics and best practices of sharing individual-level health research data in LMICs. This resource is a key output from a ... Read more
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Sharing research data
Welcome to the Resource Centre for ethics and sharing individual-level research data. This Centre brings together resources about ethical best practices for data sharing, policies and processes for data curation and data sharing, and links to repositories for data sharing.Learn more
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This peer reviewed course outlines ethical aspects of sharing individual level research data and proposed best practices. It aims to be of value to those designing and reviewing individual research protocols where data sharing is anticipated, and to those developing institutional policies and processes for governing data sharing.
Our new short course describes what ancillary care is and the main ethical questions associated with providing or facilitating it.
A 14-module course developed in collaboration with the World Health Organization.
This free and open access e-Learning resource has been adapted from the Multi-Regional Clinical Trials Center at Harvard University (Harvard MRCT) Ethics Tool Kit. The Ethics Tool Kit was created to encourage protocol authors to address ethical issues in the design of studies and document their rationale in a section of the protocol that will be easily understood by review boards and investigators.
In February 2015 Nathan Yozwiak, Stephen Schaffner and Pardis Sabeti called for principles to be established for rapid and responsible data sharing in epidemics. See their Comment in Nature for ...
Uploaded 16th June 2015 Consulting research stakeholders in Kenya on fair practice in research data sharing: Findings and Policy Implications - Dr Vicki Marsh - Senior Researcher in Social Science and Public ...
Please use this discussion topic to provide general feedback on the Essential Elements of Ethics course, including feedback on the content and user-friendliness of the modules and quizzes. You may ...
Welcome to the discussion group about ethics and sharing individual-level research data. Please post to let us know about your experiences, questions and resources you've found or developed.